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Tag: 23andMe

  • 23andMe Faces UK Fine After Data Breach

    23andMe Faces UK Fine After Data Breach

    UK Watchdog Fines 23andMe Over 2023 Data Breach

    The UK’s data protection watchdog, the Information Commissioner’s Office (ICO), has levied a fine against 23andMe following a significant data breach that occurred in 2023. This breach compromised the personal data of a substantial number of users, raising serious concerns about data security practices. The ICO’s action underscores the importance of robust security measures for companies handling sensitive genetic information.

    ICO’s Investigation and Findings

    Following the data breach, the ICO launched an investigation to determine the extent of the compromise and whether 23andMe had adequate security measures in place. The investigation likely scrutinized the company’s data protection policies, security protocols, and incident response procedures. The fine reflects the ICO’s assessment of 23andMe’s compliance with the UK’s data protection laws, specifically the UK General Data Protection Regulation (GDPR). Breaching GDPR can result in significant penalties, depending on the severity of the breach and the organization’s adherence to data protection principles.

    Details of the 2023 Data Breach

    While specific details of the breach haven’t been re-iterated here, typically a data breach involves unauthorized access to personal data stored on a company’s systems. This access could be the result of hacking, malware, or other security vulnerabilities. In the case of 23andMe, a breach is particularly sensitive due to the nature of the data involved – genetic information. Compromised genetic data can lead to privacy violations, potential discrimination, and emotional distress for affected individuals.

    Implications for 23andMe and the Genetic Testing Industry

    The fine issued by the ICO carries significant implications for 23andMe. Beyond the financial penalty, it damages the company’s reputation and erodes customer trust. 23andMe must now take steps to rectify the security vulnerabilities that led to the breach and demonstrate a commitment to protecting customer data. This may involve:

    • Implementing stronger encryption measures
    • Enhancing access controls
    • Conducting regular security audits
    • Providing better user authentication methods

    The incident also serves as a wake-up call for the broader genetic testing industry. Companies handling sensitive personal data must prioritize data security and invest in robust protection measures to prevent similar breaches from occurring. Regulatory bodies worldwide are likely to increase scrutiny of data protection practices in this sector.

  • 23andMe to Be Acquired Wojcicki Nonprofit TTAM

    23andMe to Be Acquired Wojcicki Nonprofit TTAM

    Anne Wojcicki‘s Nonprofit Set to Acquire 23andMe

    Anne Wojcicki’s nonprofit, TTAM Research Institute, has placed a winning bid of $305 million to acquire 23andMe, outbidding Regeneron’s $256 million offer in a reopened bankruptcy auction washingtonpost.com. Moreover, the deal includes commitments to preserve privacy policies and establish a Consumer Privacy Advisory Board within 90 days post-close wired.com

    🔍 Why This Matters

    Legal and regulatory hurdles: A court hearing is scheduled for June 17 to approve the sale. Meanwhile, 28 states (including New York) have sued to block the transfer of genetic data without explicit consent

    Potential shift in genetic research model: By operating as a nonprofit, TTAM aims to democratize access to genomic information and advance personalized healthcare.

    Protecting user data: The acquisition pledges to uphold existing privacy protocols and maintain transparency—critical following a major 2023 breach investors.com

    Understanding the Acquisition

    Anne Wojcicki’s nonprofit TTAM Research Institute plans to acquire 23andMe for $305 million. Moreover, the move will combine 23andMe’s rich genetic database with TTAM’s research expertise. As a result, this integration could drive new breakthroughs in disease prevention and treatment ca.finance.yahoo.com

    🔍 Key Impacts of the Consolidation

    Pending court approval: The sale, expected by mid-June, faces legal scrutiny from 28+ states concerned about genetic-data handling reuters.com

    Greater research power: The merger expands access to 15 million+ DNA profiles.

    Faster scientific discovery: Combining assets accelerates studies on conditions like Alzheimer’s and diabetes.

    Enhanced data stewardship: TTAM has pledged to uphold 23andMe’s current privacy standards and add a consumer advisory board theverge.com.

    What it Means for Genetic Research

    • Expanded Data Access: Researchers will gain access to a larger pool of genetic data, facilitating more comprehensive studies.
    • Accelerated Discoveries: The combined resources may lead to faster breakthroughs in understanding genetic predispositions to various diseases.
    • Personalized Healthcare: Enhanced research could pave the way for more personalized and effective medical treatments.

    Benefits for Consumers

    Consumers might see several benefits from this acquisition, including:

    • Improved Genetic Testing: More accurate and comprehensive genetic tests could become available.
    • Enhanced Privacy Measures: The nonprofit structure may prioritize data privacy and ethical considerations.
    • Increased Research Participation: Consumers may have more opportunities to participate in genetic research studies, contributing to scientific advancements.
  • 23andMe: How to Delete Your DNA Data Simply

    23andMe: How to Delete Your DNA Data Simply

    Deleting Your 23andMe Data: A Simple Guide

    Taking control of your personal information is essential, especially when it comes to sensitive genetic data. If you’ve decided to remove your data from 23andMe, this guide offers simple, straightforward steps to permanently delete your information. Follow along to ensure your privacy is protected.

    Why Delete Your 23andMe Data?

    Several reasons might lead you to delete your 23andMe data. Concerns about privacy, data security, or simply no longer wanting your genetic information stored on their servers are valid motivations. Understanding the implications of deleting your data is the first step.

    Step-by-Step Deletion Process

    Here’s how you can delete your 23andMe data:

    1. Sign In: Access your 23andMe account here using your registered email and password.
    2. Account Settings: Navigate to your account settings. This is usually found under your profile menu.
    3. Data Deletion Request: Look for the option to close your account and delete personal information. 23andMe provides options to either download or delete your data; ensure you select the latter.
    4. Confirm Deletion: You may need to confirm your decision multiple times. 23andMe takes data deletion seriously, so they ensure you understand the implications.
    5. Wait for Confirmation: After submitting your request, 23andMe will process the deletion. You will typically receive an email confirming the deletion is complete.

    What Happens After Deletion?

    When you delete your account, 23andMe erases your personal and genetic data from active systems. However, some aggregated, anonymized data may remain for research. Importantly, it won’t link back to you.

    ✅ What You Keep — Legally Required Retention

    • 23andMe may still retain your birth date, sex, and limited account logs.
    • They also keep anonymized data used in research—untraceable to individuals. apnews.com
    • Additionally, they may retain records like email address, order history, and consent logs for compliance. customercare.23andme.com

    🔍 Why Some Data Remains

    • First, laws require them to keep certain details for tax or audit purposes.
    • Next, privacy policies state that de-identified data can be used for future research. reddit.com
    • Finally, if any anonymized data was sold or shared before deletion, it can’t be recalled.

    Key Takeaways

    • ✅ Active deletion removes your personal genetic info.
    • ⚠️ Research data may stay, but it won’t identify you.
    • 📌 Review their privacy policy for exact details and definitions.marketwatch.com

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  • 23andMe: 15% Opt-Out After Bankruptcy Filing

    23andMe: 15% Opt-Out After Bankruptcy Filing

    Genetic Data Deletion Requests Surge at 23andMe Post-Bankruptcy

    Since filing for bankruptcy, 23andMe has reported a significant increase in customer requests to delete their genetic data. Approximately 15% of its user base has asked the company to remove their information, raising concerns about data privacy and security amidst financial instability.

    Why Are Users Deleting Their Data?

    Several factors may contribute to this surge in data deletion requests. The primary reason is likely increased anxiety about how a bankrupt company might handle sensitive genetic information. Users might fear potential data breaches, sales of data to third parties, or other misuse scenarios. Heightened awareness of data privacy issues, fueled by frequent news about cyberattacks and data leaks, could also be a contributing factor.

    Data Privacy Concerns

    • Data Security Risks: Users worry about the security of their genetic information in a company facing financial challenges.
    • Potential Misuse: Concerns arise regarding the potential sale or unauthorized use of data by the bankrupt entity or its creditors.
    • Loss of Control: Customers want to regain control over their personal information and ensure it is not compromised during bankruptcy proceedings.

    What Happens to Your Data When You Request Deletion?

    When a user requests data deletion from 23andMe, the company is obligated to remove the genetic data from its active databases. However, complete and irreversible deletion can be complex. Here’s what typically happens:

    1. Account Closure: The user’s account is closed, and access to the platform is terminated.
    2. Data Removal: Genetic data and associated personal information are removed from active databases used for research and analysis.
    3. Backup Retention: Copies of the data may be retained in backups for a certain period, primarily for legal and compliance reasons.
    4. Anonymization: In some cases, data may be anonymized and used for research purposes, ensuring it cannot be linked back to the individual.

    Protecting Your Genetic Privacy

    If you are a 23andMe customer concerned about your genetic data, consider these steps:

    • Review Privacy Settings: Regularly check and adjust your privacy settings on the 23andMe platform to control data sharing preferences.
    • Request Data Deletion: If you’re uncomfortable with the company’s data handling practices, request the deletion of your data.
    • Monitor Data Breaches: Stay informed about potential data breaches or security incidents that could affect your information.
  • Regeneron Acquires 23andMe Data for $256M

    Regeneron Acquires 23andMe Data for $256M

    Regeneron Acquires 23andMe Data for $256M

    Regeneron Pharmaceuticals has announced its plan to acquire 23andMe for $256 million, following the latter’s Chapter 11 bankruptcy filing in March 2025. This acquisition includes 23andMe’s Personal Genome Service, Total Health and Research Services, and its extensive biobank containing genetic data from over 15 million customers .23andMe Investors

    🔍 Strategic Acquisition Details

    The deal is expected to close in the third quarter of 2025, pending court and regulatory approvals. Regeneron aims to integrate 23andMe’s genetic data into its drug discovery and development processes, enhancing its capabilities in genomics-driven research . Despite the acquisition, 23andMe’s consumer genome services are set to continue without interruption .Wikipedia

    🔐 Privacy and Data Protection Commitments

    Given the sensitive nature of genetic information, Regeneron has pledged to uphold 23andMe’s existing privacy policies and comply with all applicable data protection laws. The company will work with a court-appointed ombudsman to ensure ethical handling of customer data . This commitment comes in the wake of a significant data breach in 2023 that affected nearly 7 million 23andMe users .ReutersBBC

    📉 23andMe’s Financial Challenges

    Once valued at over $6 billion after its 2021 public debut, 23andMe faced a series of financial setbacks, including a $30 million settlement over the 2023 data breach and substantial debt accumulation. These challenges led to its bankruptcy filing and the subsequent acquisition by Regeneron .The Washington Post

    🔄 Implications for the Biotech Industry

    This acquisition underscores the growing importance of genetic data in pharmaceutical research and drug development. By integrating 23andMe’s vast genetic database, Regeneron positions itself to accelerate the development of personalized treatments and therapies, reflecting a broader industry trend towards precision medicine .

    Regeneron to Acquire 23andMe for $256 Million

    Regeneron Pharmaceuticals to buy 23andMe for $256M - taking control of genetic data of millions

    New York Post

    Regeneron Pharmaceuticals to buy 23andMe for $256M – taking control of genetic data of millions

    TodayInvestor’s Business Daily23andMe Finds A Big Biotech Buyer In $256 Million Bankruptcy AuctionTodayMarketWatch23andMe sells its most valuable asset to biotech company Regeneron, which promises to keep your DNA privateToday

    The Value of Genetic Data

    Genetic data is becoming an invaluable resource for pharmaceutical companies. By analyzing the genetic makeup of large populations, researchers can identify patterns and correlations that link genes to specific diseases and conditions. This information can then be used to develop targeted therapies that are more effective and have fewer side effects.

    How 23andMe’s Data Enhances Research

    • Large Sample Size: 23andMe has amassed a significant database of genetic information from millions of customers.
    • Diverse Genetic Backgrounds: The data includes a wide range of genetic backgrounds, making it more representative of the global population.
    • Linked Health Information: Many 23andMe customers have also provided detailed health information, creating a valuable dataset for research purposes.

    Regeneron‘s Strategic Move

    Regeneron‘s acquisition of 23andMe’s data is a strategic move that could give the company a competitive edge in the pharmaceutical industry. By leveraging this data, Regeneron can:

    • Identify Novel Drug Targets: Discover new genetic targets for drug development.
    • Accelerate Clinical Trials: Improve the efficiency of clinical trials by identifying patients who are most likely to respond to a particular treatment.
    • Develop Personalized Medicines: Create personalized medicines tailored to an individual’s genetic makeup.
  • 23andMe: Bankruptcy Notice and Claims Deadline

    23andMe: Bankruptcy Notice and Claims Deadline

    23andMe Customers Notified of Bankruptcy and Potential Claims

    23andMe, the personal genomics company, filed for Chapter 11 bankruptcy in March 2025 and is in the process of selling its assets. As part of this process, customers have been notified about the opportunity to file claims. The deadline to submit these claims is July 14, 2025.WSJ+2Wikipedia+2WSJ+2

    🧬 What This Means for You

    • Filing a Claim: If you believe you have a financial interest in 23andMe’s bankruptcy proceedings—such as unpaid refunds, unfulfilled services, or other financial losses—you should file a claim by the July 14 deadline. Details on how to file can be found in the bankruptcy notice you received or on the official bankruptcy court website.
    • Genetic Data and Privacy: 23andMe’s privacy policy indicates that customer data may be sold as part of the bankruptcy proceedings. While the company assures that any buyer will be required to comply with applicable laws regarding data treatment, it’s advisable to review and understand these policies. If you wish to delete your genetic data, you can do so by logging into your account and following the deletion process outlined in the settings. However, some users have reported difficulties with this process due to website issues and long customer service wait times .WSJWSJ+1WSJ+1
    • Legal Protections: Consumer privacy laws vary by state, and while some, like California’s Consumer Privacy Act, may offer additional protections, 23andMe is not subject to HIPAA regulations. A bankruptcy judge may appoint a consumer privacy ombudsman to oversee the sale of personal data, which could provide more oversight than a typical transaction .WSJWSJ+1WSJ+1

    📌 Action Steps

    1. Review the Bankruptcy Notice: Carefully read the notice you received for instructions on filing a claim.
    2. File Your Claim by July 14: Ensure that your claim is submitted before the deadline to be considered in the proceedings.
    3. Consider Deleting Your Data: If you no longer wish to have your genetic data stored, follow the deletion instructions in your account settings.WSJ+1WSJ+1
    4. Stay Informed: Monitor updates from 23andMe and the bankruptcy court for any changes or additional actions you may need to take.

    If you need assistance with the claims process or have concerns about your data, it’s advisable to consult with a legal professional or contact the bankruptcy court handling 23andMe’s case.

    23andMe’s Bankruptcy and Customer Data Concerns

    23andMe Is Bankrupt. Here's What You Need to Know About Your Genetic Data

    WSJ

    23andMe Is Bankrupt. Here’s What You Need to Know About Your Genetic Data

    49 days agoWSJ23andMe Is Bankrupt. Here’s What You Need to Know About Your Genetic Data.48 days ago

    Key Information for 23andMe Users

    • Bankruptcy Notification: 23andMe is undergoing bankruptcy proceedings.
    • Claims Deadline: The deadline for filing claims is July 14.
    • Action Required: Users should review the notification and consider filing a claim if applicable.

    It is important for 23andMe users to stay informed and understand their rights during this bankruptcy process. Ensure you understand the implications and adhere to the stipulated deadline to protect your interests. Review all official communications from 23andMe and consult legal counsel if needed. You can visit the official 23andMe website for further details.